So, K was diagnosed with type 1 diabetes nearly 2 months ago. I wouldn't say life has gotten easier since that crazy day. We are over the shock of it all, but I'm still having a hard time. I decided to finally blog because people probably think I'm "used to it" now and when people ask how she's/we're/I'm doing, I don't want to unfurl how I really feel (because that would be overwhelming for even my closest friends), I don't want to be a downer all the time (and I feel like I am), but I don't want to lie either. So, I will blog about my feelings, events in our day, challenges, and triumphs.
First, let me clear up some things for those of you that (like me 2 months ago) don't know that much about type 1 diabetes. 1) it is lifelong. Her pancreas is barely making insulin; she's in what the the doctors call the Honeymoon Phase - I don't know why b/c this AIN'T no honeymoon!!! - but it means her body is in its final throws of insulin making and soon (could be a few months; could be a couple years), will stop all together and her insulin doses will go up dramatically. So, 2) - she must get insulin injections several times a day - which she still hates and fights tooth and nail. There is no oral medication for type 1 diabetes. (eventually she could get on the Pump, which I'll talk about another time) She must be dosed before she eats carbohydrates and she gets a different kind of insulin once at bedtime. How much we give her for carbohydrates depends on what she's going to eat, so... 3) we have to estimate/guess her carb count PRIOR to eating - and she's three years old... How many three year olds eat what they say they're going to eat...? We are constantly changing her ration/insulin because her body is still adjusting to the insulin. I don't quite understand it myself, but I know it's nerve-racking!! 4) She needs to have several periods of fasting (2 hours) throughout the day so that we can accurately check her blood glucose level. We check her at least 7 times a day. Thankfully she doesn't mind the finger pricks!! But she doesn't like to be interrupted from what she's doing. 4) No one else in our family has type 1 diabetes and they don't truly know what causes it. She was likely exposed to a virus up to a year before her diagnosis that triggered her body to begin attacking the beta cells in her pancreas. So, that is my unscientific explanation of our situation. :)
No comments:
Post a Comment